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Minority Ethnic Communities and Dementia - Evidence and Learning

pegsIn December 2020, the Life Changes Trust hosted an online learning event called ‘Dementia: A Whole Life Approach – Minority Ethnic Communities and Dementia’.  

The purpose of this webinar was to examine the impact of funding provided by the Life Changes Trust to projects across Scotland which support people with dementia and the unpaid carers of people with dementia from different minority ethnic communities. 

We looked at how the approach and work of each project has benefitted people with dementia and their unpaid carers from minority ethnic communities, and shared the learning that has emerged through our independent evaluation.  

In this webinar we heard from two carers of people with dementia, who spoke about how two funded projects – REACH and MECOPP - had helped them, and where they had faced barriers to accessing services.

We also heard from Onyema Ibe, from Blake Stevenson, who were commissioned to carry out the evaluation of the Trust’s funding for Minority Ethnic communities projects.

The key aims of the evaluation were to determine:

  • the extent to which the projects are creating better lives for people living with dementia and unpaid carers from different minority ethnic communities
  • any barriers and challenges that the projects have faced and how they, where possible, overcame them
  • the extent to which the projects provided short, medium and long-term Post Diagnostic Support for people from minority ethnic communities affected by dementia
  • the extent to which the projects worked in partnership and any significant benefits this partnership working brings
  • how the projects have contributed to deeper learning about what helps to improve the lives of people living with dementia in minority ethnic communities, and how this learning can be shared more widely

You can download the evaluation report here

After the event, the Life Changes Trust pulls together a learning report which includes a brief summary of the event, discussion points during the Q&A sessions about the evaluation and how projects are delivering, key points raised in break-out rooms and the key messages that people felt were important to influence change going forward.

You can download the Learning Event Summary and Evaluation Report here

You can watch our full webinar, or you can just watch some of the presentations, whatever works for you.

 You can watch the full webinar below:


In Onyema Ibe’s presentation, she reflected on some of the key findings from the evaluation and shared some recommendations for improving the experience of people living with dementia and carers from ethnic minority communities when they are looking for support.

You can watch Onyema’s presentation, below:

Among our speakers was ‘Amy Gill, who is the dementia link worker at the REACH Community Health project.  REACH works with individuals and families from South Asian Communities living with dementia in south Glasgow, primarily people from the Pakistani, Indian and Bangladeshi communities.  Amy talked about how she got involved with REACH and about some of the families she met as dementia link worker.  She also very kindly interviewed a carer she has worked with – Bushera – who looks after her husband Mo, who has dementia. Amy and Bushera conversed in Urdu and Punjabi. At their request, the families names were changed, and in this film, Amy role plays the interview with one of her volunteers, Mandeep, who speaks the words of Bushera.

You can watch this film, below:

During our webinar we also heard from MECOPP. MECOPP works with and provides dementia support services to the Chinese community in the NHS Lothian Health Board area. ‘Chi Sin Chi Mei’ is a two-year Chinese dementia support project which aims to increase the community’s knowledge and understanding of the condition. Suzanne Chong, who is the project worker, also provides information, advice and support to people who are in the process of being diagnosed or who have a pre-existing condition and their carers.

In this film, Suzanne interviews Mrs Fung, who cares for her husband who has a diagnosis of dementia. Suzanne’s interview with Mrs Fung was conducted on the telephone, as the family requested not to be visually identified. As Mrs Fung speaks Cantonese predominantly, the interview was carried out in Cantonese.  So what you will see is a recording of their telephone conversation, in Cantonese, with English subtitles.’ 

You can watch this film, below: 

The Trust would like to thank Onyema Ibe, Amy Gill, Mandeep Deerhe and Bushera, Suzanne Chong and Mrs Fung, and panellists Eman Hani and Shabir Banday.