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Dementia Activism Week - Day 1!

Publication date

Today, 14th September, is the first day of Dementia Activism Week. All week we will be sharing some of the fantastic work that has been done in Scotland already by people living with dementia to inform and influence, and to take the lead in what matters to them - remember activism can take many forms, small or large! We want to encourage as many people to get alongside and support Dementia Activism Week including people with dementia, unpaid carers, supporters and stakeholders.

We start the week looking at the book 'Loud and Clear - exploring two decades of involvement, voice and activism by people with dementia in Scotland', which we published last month, and which was written by Philly Hare.

'Loud and Clear' tells the story of how people living with dementia in Scotland have become activists and influencers in their own right over the last twenty years.  

It’s the first book of its kind, charting the history and telling the story of how people with dementia in Scotland confronted the status quo. The story is told largely through the eyes of dementia activists themselves, and reflects their successes and struggles to achieve ground-breaking change. 

From 20 years ago, things have started to shift significantly, thanks to a group of people in Scotland living with dementia, speaking up and becoming activists themselves. After decades of silencing and discrimination, people with dementia have been joining forces, taking action and campaigning for social change. Their work has changed policy in Scotland and influenced others across the world.

'Loud and Clear' tells their story.

Some of the dementia activists who feature in this book have made a short film, reading passages that are meaningful to them, and reflecting on key moments in their journeys.  This is their film.


You can download the ‘Loud and Clear’ book here 

There is also a ‘Loud and Clear’ short publication containing ‘Practical Tips’ for newer and future dementia activists, their advocates and allies.

You can download it here