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Dementia Activism Week - Day 4!

Publication date

Today, 17th September, is the fourth day of Dementia Activism Week. All week we will be sharing some of the fantastic work that has been done in Scotland already by people living with dementia to inform and influence, and to take the lead in what matters to them - remember activism can take many forms, small or large!  We want to encourage as many people to get alongside and support Dementia Activism Weekincluding people with dementia, unpaid carers, supporters and stakeholders.

Today, we are talking about encouraging others to support people living with dementia to reach their full potential and do what matters to them. We held a webinar on zoom entitled 'How To Be A Good Ally to Dementia Activists'.

In this event, we showed a film of three people who are living with dementia in Scotland, Agnes Houston, Ron Coleman and James McKillop, in discussion about 'How To Be A Good Ally to Dementia Activists'. They then took questions from participants on what this looks like in practice.  There are a few small technical gremlins, but it was a truly inspiring event, with some really powerful contributions.


We also previously published a book called  'Loud and Clear - exploring two decades of involvement, voice and activism by people with dementia in Scotland',written by Philly Hare.

It charts a 20-year history and tells the story of how people with dementia in Scotland confronted the status quo. The story is told largely through the eyes of dementia activists themselves, and reflects their successes and struggles to achieve ground-breaking change. 

It’s a fantastic testament to the work that has gone before, an inspiration for others to follow in their footsteps, and it’s also a great read.

You can download the ‘Loud and Clear’ book here 

There is also a ‘Loud and Clear’ short publication containing ‘Practical Tips’ for newer and future dementia activists, their advocates and allies.  

You can download it here