NEWS: Dementia ‘Peer-to-Peer’ Resources funding success
Following the success of the booklets ‘Driving with Dementia’ and ‘Dementia and Sensory Challenges’, written by and for people living with dementia, the Trust launched a programme of ‘Peer-to-Peer’ resources funding in 2016. We have now allocated all of the funding, with 26 awards made totalling £115,631. This means the average award was just under £4,500.
About Peer-to-Peer Resources
We firmly believe that people living with dementia in Scotland have an enormous amount of knowledge and helpful information to share with each other.
One of the most influential projects we funded in 2015-16 was a booklet produced by a person living with dementia called Agnes Houston, in collaboration with other people with dementia, called ‘Dementia and Sensory Challenges’.
The booklet has been read by at least 33,000 people in Scotland alone. It has been translated into Czech, Welsh, Chinese, French and Japanese (in those countries).
We also published ‘Driving and Dementia’, written by James McKillop, a person who lives with dementia who wanted to share his experience of giving up driving because he thought it might help other people with dementia who have to do the same.
Due to the success of these two booklets, we decided to fund further peer-to-peer resources through which people with dementia could raise awareness of a particular issue, offer advice or share learning that will help others.
We offered awards of £500 to £7,000 to people with dementia to create peer-to-peer support resources, e.g. booklets, DVDs, videos, self-help guides etc.
This funding was to enable people to produce their own resources that would help others to understand dementia better, and allow people with dementia to equip and encourage each other.
The learning from these peer-to-peer resources has gone beyond the sphere of people living with dementia. They have made carers, professionals and others sit up and take note of what people with dementia are saying. They have influenced the re-writing of training and guidance for professionals in a number of organisations and are also used by professionals, including hospital or care home staff, as educational and informational tools around dementia, and have led to an increased understanding of dementia and the experiences of those living with the condition.
This funding has allowed people with dementia to feel empowered to speak out about their experiences.