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Dementia - The Carers Experience: A 'How To' Guide for running events


This is a practical resource for people caring for someone with dementia, unpaid. It is for carers wanting to come together in their local community and organise their own event – an event By Carers For Carers.

The Life Changes Trust funds work which will improve the lives of people with dementia and unpaid carers. People living with dementia and carers have a huge amount of knowledge to share with each other, and both groups tell the Trust that they value peer-to-peer support.

The Guide grew out of the Life Changes Trust’s carer-led conferences initiative which is about empowering carers. The focus is on enabling carers to create events for their peers, taking the lead and being seen to leading.

It started in 2017 when the Trust invited carers to design and organise their own event for fellow carers of people with dementia. The Trust’s priority was that the event should be meaningful for people caring for someone with dementia.

Two events have taken place, badged as ‘Dementia – The Carer’s Experience (Better Enabled, Better Equipped)’. The first was in Glasgow in September 2017 and the second took place in North Berwick in East Lothian in May 2018.

The Trust wants to enable more carers to do the same. The Guide is intended to offer a template for planning and organising an event for carers. 

The Guide provides guiding principles, practical tips and links to sample materials. The hope is that other carers are encouraged to run their own event and, from the experience, they gain new and expanded learning, renewed confidence and empowerment.

Download the 'How To' Guide here