Conferences By and For Carers
On Saturday, 30 September 2017, the Life Changes Trust hosted a very special conference, run by carers and for carers. The event was designed and organised by a steering group of people with long experience of caring for someone living with dementia, unpaid.
This conference was for people caring for someone with dementia, unpaid, and who lived in Glasgow, North Lanarkshire, South Lanarkshire, East Dunbartonshire, West Dunbartonshire, Renfrewshire or East Renfrewshire.
East Lothian event
A second, equally meaningful event took place on 22 May 2018 in North Berwick which was for people caring for someone with dementia, unpaid, living in East Lothian. It too was planned and organised by a steering group of local carers who built on, and added local perspective to, the approach first developed by the Glasgow conference carers steering group.
One of the presentations was given by Trish Carlyle (formerly Leddy), East Lothian Health and Social Care Partnership. You can see her slides here.
We have also produced a report from this event, providing a summary of discussion and learning, which you can download here.
Badged as Dementia – The Carer’s Experience (Better Enabled, Better Equipped), both the Glasgow and East Lothian events were free.
Resources - Glasgow
Some members of the Glasgow conference steering group made a short film to describe their experiences and to offer advice and support for anyone thinking about getting involved in future events in their area.
Maureen, Myra and Annette – being part of the steering group
The group also produced 2 valuable peer to peer resources for carers who attended their conference – a checklist of things to help people caring for someone with dementia and a directory of support and services available locally. The Directory lists services, groups and activities that could be helpful to people who care for those with dementia, listed by the geographical areas covered by the Glasgow event. Download the Directory here. The checklist is a resource to help those who care for someone with dementia to put in place the right systems and support, and where to turn to for advice. Download the Checklist here.
Here are some of the Glasgow conference steering group talking about the above carer publications they produced.
Resources - East Lothian
Some members of the East Lothian conference steering group also made a short film, describing their experiences, challenges and achievements, and offering advice and support to anyone thinking about getting involved in future events.
Moyra, Alison and Anne – being part of the steering group
The group also produced a checklist for East Lothian, and also a local directory of services, groups and activities in the area:
A Dementia Checklist, A Resource by Carers for Carers: The East Lothian carers steering group updated the Glasgow Dementia Checklist for giving to carers attending their event. You can download the East Lothian Checklist here.
Dementia - A Carers Local Directory, A Resource by Carers for Carers: The Directory lists services, groups and activities that could be helpful to people who care for those with dementia in East Lothian. You can download the East Lothian Directory here.
Funding and support to the carers steering group who planned and organised these events was provided by the Life Changes Trust. tide (together in dementia everyday) also lent valued support and training to the steering group.
The Life Changes Trust plans to publish A How To Guide for Carers in Autumn 2019. The Guide will be a peer to peer resource for people caring for someone with dementia, unpaid.
The Guide grew out of our two carer-led conferences and will be all about empowering carers. The Trust now wants to enable more carers who want come together to organise similar events in their local community. The Guide will offer carers a very practical tool for putting on their own event and producing their own publications. It will include guiding principles, practical tips and links to sample materials.
Sign up for our e-bulletin to find out when it is published.