This page provides some useful resources – websites, links, publications, short films – to help support young people with experience of being in care, people living with dementia and those who care for people with dementia.
Here is a list of some organisations that provide resources, information and support for people living with dementia and the unpaid carers of people with dementia.
About Dementia Toggle accordion
About Dementia: Shaping Our Worlds Together is Scotland’s forum for improving lives. Many people affected by dementia are still struggling to get the support they need when they need it. About Dementia provides resources and support to empower people affected by dementia to develop solutions to everyday challenges and create change in dementia policy and practice.
Age Scotland Toggle accordion
Age Scotland works to improve the lives of all people in later life, challenging prejudices about older people and helping them enjoy a better later life by providing vital support. Age Scotland provide many resources and guides for those living with dementia and those who are unpaid carers, as well as a helpline.
Alzheimer Scotland Toggle accordion
Alzheimer Scotland is the leading dementia organisation in Scotland. They provide a wide range of resources and specialist services for people living with dementia and those who care for them.
BOLD Toggle accordion
BOLD (Bringing Out Leaders in Dementia) is providing free leadership development opportunities to support and unlock the potential of people living with dementia, unpaid carers and those who work in the field of dementia, to help them develop their knowledge and skills and build stronger networks so that they can be part of leading positive change.
DEEP Toggle accordion
DEEP (Dementia Engagement and Empowerment Project) is the UK network of dementia voices. DEEP consists of groups of people with dementia – groups that want to change things. DEEP engages and empowers people living with dementia to influence attitudes, services and policies that affect their lives. They provide guides and resources for people living with dementia and also for those writing about, learning about or working in the field of dementia.
Dementia UK Toggle accordion
Dementia UK provides specialist dementia support for families through their Admiral Nurse service. Admiral Nurses are continually trained, developed and supported by Dementia UK.
Call the Dementia Helpline for free on 0800 888 6678 for support from dementia specialist Admiral Nurses. The Helpline is open from 9am to 9pm Monday to Friday and 9am to 5pm on Saturday to Sunday.
National Coalition of Carers Toggle accordion
The Coalition provide information and mutual support for carer-led organisations in Scotland and bring carers and workers together to explore ideas and identify key issues affecting carers in Scotland.
National Dementia Carers Action Network Toggle accordion
The National Dementia Carers Action Network (NDCAN) are a national campaigning group, part of Alzheimer Scotland, that aims to represent and raise awareness of the particular challenges encountered by carers of people with dementia. They also provide resources on resilience, such as self-care, getting a diagnosis, moving into a care home and what to do when problems arise.
Scottish Dementia Working Group Toggle accordion
The Scottish Dementia Working Group (SDWG) is a national campaigning group, run by people with dementia. They are an independent voice of people with dementia within Alzheimer Scotland. The Working Group campaigns to improve services for people with dementia and to improve attitudes towards people with dementia. Anyone with dementia is welcome to join.
tide Toggle accordion
Tide (together in dementia every day) is a national involvement network for carers and former carers of people with dementia. They provide a carers development programme which provides individuals with the knowledge, skills and confidence to champion their own their rights.
Young People with Care Experience programme
Here is a list of some organisations that provide resources, information and support for young people with care experience and those who work with them.
Barnardo’s Toggle accordion
Barnardo’s Scotland supports some of the most disadvantaged children, young people, parents, carers and communities to ensure that every child has the best possible start in life. They provide specialist resources and support for young people leaving care.
CELCIS Toggle accordion
Centre for Excellence for Looked-after Children in Scotland (CELCIS) is a leading improvement and innovation centre in Scotland. They provide resources, briefings, training and information for young people with care experience and those who work with them.
Children in Scotland Toggle accordion
Children in Scotland brings together a network of people working with and for children, alongside children and young people themselves, providing resources and learning for improving the lives of young people.
Future Pathways Toggle accordion
Future Pathways supports people who experienced abuse or neglect as a child in care in Scotland. They provide a range of resources and support, including counselling, access to work and education, and health and well-being support, to help people find their own pathways to a positive future.
Quarriers Toggle accordion
Quarriers is a Scottish charity dedicated to helping children, families and adults overcome adversity. They provide information and resources on self-directed support, young adult services and fostering services among others.
Rock Trust Toggle accordion
Rock Trust aims to end youth homelessness in Scotland by ensuring that every young person has access to expert youth specific services to assist them to avoid, survive and move on from homelessness. They provide resources, advice and support.
STAF Toggle accordion
The Scottish Throughcare and Aftercare Forum (STAF) was set up to improve the life chances of young people leaving care in Scotland. They provide learning and development opportunities as well as advocacy, involvement and empowerment projects.
Who Cares? Scotland Toggle accordion
Who Cares? Scotland is a national voluntary organisation providing a range of advocacy, advice and support services across Scotland for children and young people with experience of care up to the age of 25.